pencil_and_sharpener

Connect (With Me)

facebook_box_blue_64 twitter_box_blue_64 linkedin_box_white_64

Blog Tags

Latest Blog Entries

  • On Being A Constella ...
    Not that I always
    make excuses for not
    blogging as a way to
    start a blog entry
    (ok, fine, so maybe
    I do), but I
    haven’t had
    much time or spoons
    for blogging this
    past month or so,
    because I’ve
    been so busy going
    to var ...
    Readmore...
  • Spoonless in San Raf ...
    I’ve been
    thinking a lot about
    Spoon Theory lately,
    which made me
    realize I’d
    never talked about
    it here on
    Parentheticals. For
    those who
    don’t know,
    Spoon Theory is a
    metaphor used by the
    disability community
    to ...
    Readmore...
  • Birthday and Cancer- ...
    I’m a few days
    late getting this
    traditional birthday
    blog post up this
    year, because there
    was a lot going on
    for my birthday and
    then I got sick
    (which I refuse to
    take as an
    indication that I
    overdid it around
    the birthda ...
    Readmore...
  • New Year’s Intention ...
    It’s taken me
    a couple extra weeks
    to actually write
    this down in any
    coherent way, but
    I’ve been
    thinking a lot about
    my
    intentions/resolutions
    for this 2017 year,
    and I think they are
    finally coming into
    focus. I thi ...
    Readmore...
  • Year End Reflections ...
    Once again I am
    stealing some time
    away amidst the
    familiar familial
    hurly-burly that is
    our Stinson New
    Year’s
    tradition to do some
    reflection on the
    past year and record
    it for posterity.
    2016 will definitely
    be a memorabl ...
    Readmore...

Parentheticals

A blog in which Our Heroine records, reflects and wrestles with meaning. With lots of asides.
Tags >> solipsistic

Spoonless in San Rafael

Posted by: julia

Danger: Spoon ShortageI’ve been thinking a lot about Spoon Theory lately, which made me realize I’d never talked about it here on Parentheticals. For those who don’t know, Spoon Theory is a metaphor used by the disability community to explain what it feels like to have a limited amount of energy available for basic tasks of daily living and how it is more difficult to replace or regenerate that energy if one is dealing with a disability or chronic illness than it would be for others. (A “spoon” in this metaphorical sense just refers to “a unit of energy”, not an actual eating implement.) People use this metaphor to express various ideas about having energy, running out of energy, safeguarding one’s energy, spending one’s energy, etc. So one might say, for example, “I wish I could go out to that event tonight, but I am all out of spoons.” Or, “It took almost all my spoons just to shower and get dressed today.” Or, “I used all my spoons up yesterday and I don’t have enough back to do that today.”

When I was going through the active phase of my cancer treatments, with all the chemotherapy and surgeries, I was definitely much more spoon-deprived than I was used to being. Of course it made sense that all the difficult physical demands of killing cancer cells and re-sculpting my body would take a lot of spoons, and it was not surprising that I found I needed to hoard my spoons and spend them only (or at least mostly) on self-care and recovery activities (however broadly or personally defined those activities may have been in my specific case).

But then I got better, and after a while the physical demands eased and I found my spoons didn’t run out so fast. I found I could go back to spending my spoons on activities and projects besides self-care and daily living, like I had been used to doing. So of course, I did. And I’m happy to report that physically, my stamina and spoon supply seems to be nearly back to normal. (If I had to estimate, I’d say I’m at about 85-90%.)


I’m a few days late getting this traditional birthday blog post up this year, because there was a lot going on for my birthday and then I got sick (which I refuse to take as an indication that I overdid it around the birthday shenanigans...it is after all seasonally appropriate and I have been around a lot of people). Today I’m finally feeling better though and ready to contemplate this dual anniversary as I do every year and see what it feels like this time.

For those just now coming to the party, my birthday is also the day I got diagnosed with cancer...the first time, back when I was 23. That makes this year my 25th anniversary of the day my relationship with my body and my mortality abruptly changed. 25 years is a nice round number and worthy of celebration, though it would feel nicer (and more victorious) if there hadn’t also been this new diagnosis and cancer saga part 2 that I have been dealing with for the past year-plus. It’s become interestingly complicated to do this yearly philosophizing now that there are two cancer-versaries to contemplate, but I still like the dramatic dichotomy that this day of transitions from one state to another (from unborn to born, from healthy to ill) presents.

I do still feel a sense of victory, of having made it this far after the initial shock and upset of that first diagnosis. But that sense of victory is tempered now with the reality that life is complicated and the lesson that victory often comes at a cost (which sometimes takes a lot longer than expected to manifest). I can no longer see my life as divided into only three phases, pre-cancer, cancer treatments and post-cancer survivorship—my survivorship status is now no longer something I can confidently assume will not change, since it already has changed once, from cancer survivor back to cancer patient and then back to survivor again. Don’t get me wrong, I’m humongously grateful for and pleased at being back in the survivor identity after a tough second go-round, but the very fact that the pendulum has swung back and forth between having and surviving cancer an additional time makes me have to acknowledge that it could certainly do so again. (In fact, it is more likely to do so again than it once was.) I have to constantly be able to hold two possibilities in my head and heart: on the one hand, that I am free, that I have fought the good fight and triumphed and cancer has once again vanished from my body, never to return because we have salted the earth quite thoroughly (and will continue to for years to come, just in case); and yet on the other hand, that treatments for cancer can sometimes cause cancer, as they did in my case, and that my body seems to be a fertile ground for cancer (as evidenced by it popping up at least twice now that I know of), so even though we have done all we can to prevent recurrence, I cannot be certain that it won’t happen. Holding two opposite things simultaneously and being comfortable in that “gray area” of uncertainty is something I learned to do back in the first go-round with cancer, but now I’ve had a chance to repeat the lesson and it is even more nuanced and complicated. I would say that the ability to live in the gray is one of the hallmarks of maturity, so I guess I would also say “yay me” that I have made it far and long enough to even mature.


It’s taken me a couple extra weeks to actually write this down in any coherent way, but I’ve been thinking a lot about my intentions/resolutions for this 2017 year, and I think they are finally coming into focus. I think I am coming to accept that this year is *not* a year for proactively taking on new big challenges and aspiring to grander activities; I still have more recovery and processing to do before I feel like I will be “free” enough to seek out and accomplish big projects or big changes to my intentional life design. I still do feel a pressure to accomplish and help (help people, help our country, help change the world to be a better place) but I also feel a resistance, a need for taking my time and continuing with the self-care (which is mostly not physical anymore, which makes it a little more complicated). I think it is so important to be politically active and make my voice heard and help others make their voices heard too, but I still have to be conservative with my spoons so I don’t burn out or fall into despair and depression. So I want to focus on “small ball”, by which I mean working at a more local, personal level to live my values and operate as the kind of person I want to be in my marriage, my family, and my communities. I want to be a role model and really commit to the idea of “be the change you want to see in the world”.

So what do I believe in? What are my values? What kind of world do I want to live in? Maybe it would be helpful to list some of them for reference.

  • I believe that people are more important than things. I prioritize spending time with people and making them happy over most everything else.
  • I believe everyone—yes, everyone—has equal value and importance. Like Jewish tradition teaches, saving one person is like saving a whole world (and therefore hurting or destroying one person is like hurting or destroying a whole world.)
  • I believe that for the most part, diversity and differences make us stronger and more interesting and should be celebrated and eagerly sought out, not ignored or devalued.
  • I believe in community and collaboration, because we are all connected. I think it does indeed take a village to raise our children and make our neighborhoods clean, safe and nurturing.
  • I believe that people are intrinsically good at heart and have the same basic needs for respect, safety, love, connection, comfort, creativity, meaning and purpose.
  • I believe we humans are the stewards of this one unique planet Earth and it is our individual and collective responsibility to live in a way that supports and protects our global environment for ourselves and for all future generations.
  • I believe in tikkun olam, the healing of the world, and in partnering with each other to make the world a better place for all, not just some.
  • I believe in justice and the application of appropriate consequences for wrong actions, not as punishment but as encouragement and scaffolding for learning how to do things right in the future.
  • I believe in peace.
  • I believe in treating others as you would like to be treated.
  • I believe that each one of us has amazing gifts and important stories to share, and that we should both share our own gifts and stories and take the time to appreciate each other’s gifts and stories.
  • I believe in optimism and hope, even in the face of difficulties.
  • I believe in honesty.
  • I believe in self-reflection and personal growth, because the more we understand ourselves the stronger and more resilient we get and the more we can empathize with/connect to other people.
  • I believe in treating others (and myself) with kindness and respect.
  • I believe in play and creativity and trying new things.
  • I believe in being of service.
  • I believe in the “oxygen mask theory” where you need to take care of yourself first in order to then take care of others.

I’m sure there are more things I believe in, but this is a pretty good list for now. If I can keep reminding myself to live my life according to these beliefs I think I’ll have a successful year.


<< Start < Prev 1 2 3 4 5 6 7 8 9 10 Next > End >>
This web site and all content © 2016 by Julia Dvorin. All Rights Reserved (until you ask me nicely if you can re-use something; then we can talk).