Julia in her new Lady Luck costume, strutting the runway at Kostume KultFriday we were supposed to have a volunteer space on Headspace but it was broken and not going anywhere, so we had a day free of commitments to explore and play and do whatever we wanted. What that turned out to be was a slow start and some fun chill time in the back of camp with various friends over at our camp neighbors Deron and Suneeta’s place, and then Mom and Kathy and I decided to go over to our neighboring camp, Kostume Kult, for some free costumes. We’d been hearing them all week with their very loud sound system and often obnoxious MCs talking about the people strutting the runway, but we hadn’t yet gotten around to the whole Kostume Kult experience. What is the Kostume Kult experience you ask? I will share. First we went and waited in line along the edge of their frontage, which looked like a graffiti’d metro car cut in half, and watched people who had acquired their new costume pieces come do a parade down a long elevated runway that led from the curtained back of their frontage up to the Esplanade. Then we were welcomed in groups to pass through a curtain and into a large tented space full of clothing racks and bins on tables and wall clips full of costumes and accessories. A lot of what they had there were actual costumes (e.g. the low quality kind made for Halloween and other costume events that you might find at a Spirit store) as opposed to just fanciful costume pieces, but because burners could also bring things to gift (we didn’t, although apparently if you did you were allowed to skip the line), there was some random one-off stuff in the mix too. After browsing around we all found some fun things to try on, which we did over in one corner of the tent. Kathy found a beautiful long pink tropical flower print dress with little ruffles on the neck and sleeves, Mom found a black gauzy overshirt and a bright pink Mad Hatter soft top hat, and I found a silly “Lady Luck” costume which was a long stretchy green dress with three-dimensional foam dice as shoulders (being a long time tabletop gamer, I could not resist a costume with dice), a gold horseshoe insert at the neckline and a gold chain “belt” with a four-leaf clover, a small foam die, fake rabbits feet and a heart hanging from it, paired with an oversized “leprechaun” green top hat with a fake gold buckle on it. Once we were satisfied with the things we found and ready to take them away, we put them on and exited the tent, where we waited in a much shorter line to go show them off on the runway. It was fun to strut down the runway dancing to the music and doing model twirls; the MCs were obnoxious and loud but generally supportive. Sadly, at some point in the trying on fuss I lost my sunglasses, and even though I went back right away to look for them, there was no way of finding them in all the piles and bins of stuff. (I lost a lot of things—sunglasses, water bottle, buff, earrings, flashlight—at the burn this year, like little aftershocks of the bigger losses I had experienced during the year between last burn and this one. But they were very clearly just things, and though I was sad to see them go, it didn’t bother me that much.)

Anjanette climbing Lord SnortWe went back to camp to show off (and in my case, take off) our finds, and hung around for a bit longer with our campmates, until finally at some point in the afternoon Anjanette and I motivated to go out on another playa art adventure. (I got to spend a lot more time with my bestie at this burn than I had anticipated, and that was a real joy.) She wanted to climb on the giant warthog, which even though it was not spinning anymore looked too hard and dangerous for me, so I declined and cheered her on and took pictures from the ground. She made it all the way to the top and back again with no incident.

Doors to RecoveryOne other cool highlight from that set of art adventures was a piece that I later found was called “Doors to Recovery” but which Anjanette and I were calling the Lotus Temple (there was a giant and gorgeous Lotus Temple we had spent some time in the year before, but this was much smaller). It was a room-sized, lilac purple octagonal structure with a conical roof, and a big white lotus flower at the top of the roof. Each facet of the octagon had a door in it, and each door was painted with a beautiful painting and a question above it, which said things like “what makes your heart sing?” or “what sets your soul on fire?”. There were a few fill-in-the-blank questions too like “addiction is...” or “a natural high is...” or “self-love is...”. You chose a door to enter through, and once you entered you realized that (not surprisingly, given the size of the building) all doors led to the same interior space. Right in front of you when you first entered were chalkboard-painted walls punctuated with open entryways into an inner room. The chalkboard walls had the same questions as the outer doors above them, and space and chalk to write your answers below.

Quote from the inner room of Doors to RecoveryOn one of them I wrote the same “everything is going to be okay in the end...if it’s not okay, it’s not the end” quote that had become such a theme for me this burn. The inner room inside the chalkboard walls was mirrored and at the top of the walls were two long quotes, one of which said “The lotus flower begins from mud and darkness, finding the strength to rise to the light and bloom its beautiful flower,” which is a flowery version of one of Anjanette’s favorite quotes ("no mud, no lotus") and similar to my own love for the “suffering cracks us open and lets the light in” philosophy. The ceiling inside that inner room was hung with gorgeous pierced-metal lanterns with purple light inside, and the whole thing was really beautiful. It was the perfect art piece for the two of us.

Helios burningAfter we got back to camp that afternoon, I don’t remember much else besides climbing up on someone’s RV to look at the beautiful sunset and getting ready to go out for the evening again. We did at some point go over to Moon Cheese to get some late night grilled cheese (our camp had loaned their camp some room in our refrigerator truck so they let us cut the line to get our grilled cheese). So they brought us out a big metal bowl full of sandwiches and we got to nibble on warm grilled cheese while listening to awesome live music next door at Crossroads. After that a group of Pinkies went over to see the Helios burn at midnight, which was gorgeous and exciting and started with a ton of fireworks. It was the first big burn I’d been to that week and it got the burn excitement going for sure.

 

[Da Vinci's Workshop Intro]

[Da Vinci's Workshop Part 1]

[Da Vinci's Workshop Part 2]

[Da Vinci's Workshop Part 3]

[Da Vinci's Workshop Part 4]

[Da Vinci's Workshop Part 6]

[Da Vinci's Workshop Part 7]

[Da Vinci's Workshop Part 8]

[Full Set of My Da Vinci's Workshop Pictures on Facebook]

Freaks making flags at Pink HeartThursday morning I had to get up bright and early to run my “Fly Your Freak Flag High” (FYFFH) workshop, which started at 9am. (I almost never have to set an alarm on playa, but this was one of those times.) Mom had agreed to help me run the workshop, so she and I grabbed my box of flags and the box of newspapers and sharpies and made it out to the Pink Lounge right before 9. There was actually one eager soul already waiting there for us, but otherwise all was sleepy and early morning-vibe. I roped in a few more people who were hanging around the lounge, and got everyone started coloring. Then I took some blank flags and wandered around trying to convince other people to come play with us. I gave a few flags to the Pinkies working the water bar so they could recruit people who came for water (and do their own flags if they wanted). I realized this year it worked best to invite people to “come color with us” as opposed to “would you like to make a flag/make some art with us”. I think that’s because with the new popularity of adult coloring books and coloring as a meditative/relaxing activity, people were more interested in coming to chill out and color on something while chatting with others than perhaps they were interested in a specific workshop/art-making experience about figuring out what kind of freak they were and displaying that publically. Which is not to say that we didn’t do both (in fact I think the “come color” concept was a good Trojan horse way to ease people in to the fuller experience of thinking about their identities), but the “chill and color” concept seemed to be especially attractive in the early morning (probably would be during the hot afternoon siesta hours as well).

Freaks flying flags after the FYFFH workshopAnother thing I noticed about the FYFFH workshop this year was that we had many fewer people participating this year (probably only about 20 folks over the course of the two hours), but they were all really into the activity. Many who did participate took it really seriously and spent quite a bit of time making their flags. I had one woman tell me how making her flag really helped her clarify and bring into focus some of the big epiphanies about her burn, and she really appreciated having a way to create a physical memento to remind her of them. Cool! With so relatively few people to manage, I had more time to connect and hear people’s stories about their flags and what they put on them, and really give people the gift of being seen and heard. (I especially enjoyed chatting with a young man from Boston who gave me enthusiastic recommendations about “livetronica” bands from Philly to listen to after I asked him about the logo he’d put on his flag.) My friend Ron came by during the workshop and made a flag and we got to catch up a bit, which was great, and my new artist friend and camp-mate Deron came and made a flag too.

Supernova and Mystic dressed for the Pink RideAround 11am people were starting to gather for Halcyon’s Hug Nation talk and the Pink Ride (which meant our Pink Lounge was getting crowded), so I gathered up the coloring supplies and the box of flags and put them away and went to go get all pinked up for the Pink Ride. There were a bunch of Pinkies hanging around in the back of camp while Halcyon was talking, waiting for the Pink Ride to start. It turned into a mini-Meats and Cheeses farewell party over at Rod and Sarah’s shade patio, since they were going to be leaving the burn later that day. Eventually Josh and I went out front to get our bikes ready to roll and check in on what was happening with Halcyon’s talk, and I discovered Anjanette out past the Dream Swing flying a kite in the increasingly windy (and dusty) weather. She was having a happy time with her kite and decided not to come on the Pink Ride. Eventually the pink masses gathered and rolled out on the Pink Ride, following Halcyon and yelling “I love you!” and various compliments to people we passed as we cycled by. (People almost always yelled “I love you!” back.) The Pink Ride went a different route this year (I think because we were closer to Center Camp this year and Halcyon wanted to extend the ride a little). We rode out to the Man plaza and then down the 6:00 spoke to Center Camp, and circled the “Inside the Mind of Da Vinci” sculpture on the way. While we were all standing around in the big circle outside Center Camp waiting to go inside, I gave away the rest of the 40 or 50 pink heart bubble-wand necklaces I’d made (I’d given some to campmates earlier). Then we all held hands and spiraled in to Center Camp in a massive pink swirl and had a big “love you!” hug-fest with everyone.

Supernova and Mystic on top of After the hug-fest broke up, Josh and I decided to linger a while at Center Camp. I wanted to check out the stage there where I would be performing later that evening, plus I’d been promising myself a cup of iced coffee. (I’d been mostly off caffeine since my chemo treatments started back in January, and this was my ritual welcoming it back.) It was, as hoped, just as delicious as always and I talked really fast for a little while but otherwise didn’t feel particularly jittery or anything. We sipped and scoped out the scene for a little while and then decided to go on a mini-art adventure on the way back to camp. So we headed back up the 6:00 spoke towards the Man again, with the intention of spending some time at the interactive workshop area around it. On the way we detoured to check out two amazing giant gorilla sculptures (official name was apparently “Seeing Humanity for What It Really Is”) made of cardboard over wooden frames, and met the artist there who was making some repairs to one of the gorillas. We also got a chance to stop and appreciate more fully the “Inside the Mind of Da Vinci” sculpture and meet the artist Mischell, whom I had recently friended on Facebook after seeing an interview Halcyon did with her when he was at the Generator in Reno. I really admired that particular art piece and how beautifully it was sculpted. Josh and I did the typical Burning Man thing of climbing on it, and took a few pictures, and then we biked out to the Man plaza to see what was going on there.

The rotating Man (who didn't rotate)Josh had been really eager to check out the blacksmith/metal-working workshops in the plaza, but they were either closed or way too crowded while we were there so we kept looking around instead. We got sucked in to a brief activity where people put on togas and arranged themselves around a backdrop that looked like the Last Supper and took pictures, and we stood in line (and chatted with people) for a bit to make leather-stamped pendants. There were other things to make but Josh didn’t want to get too deeply involved in anything so we mostly just looked around at what was there. It was also getting pretty dust-stormy (which is typical for midafternoon) so we eventually just gave up and decided to bike home. We stopped on the way at the porta-potties because Josh had to use them, but I didn’t so I went over to the nearest big art sculpture, the giant Medusa head. While I was sitting there waiting for him a big whiteout dust storm blew through—I could barely see the giant sculpture in front of me and for sure couldn’t see the porta-potties beyond that. I had a brief anxiety that Josh wouldn’t be able to find me after he came out of the potties, but as it turned out the whiteout eased pretty quickly and it wasn’t a problem. Still, we were pretty dusty when we got back to camp, so I decided to change before going back to Center Camp for my handpan jam.

Bliss and Supernova (with handpan) on the Center Camp StageI had to go over to Center Camp a little early and check in before my scheduled stage time, and Josh and a few other Pinkies came with me (Ali and Keith, Anthony and Kathy, Mom, I’m probably forgetting others). I was pretty nervous, having never played handpan on a stage with microphones and an actual audience, but everyone at the backstage was very nice and helpful and made me feel respected as a performer. Josh was with me backstage for a while but then he went back out front to get a good spot to watch and take video from. No other players showed up to jam with me (which I had mostly expected), so it was just me up on stage, at least for the first few songs. I hadn’t really prepared any specific songs or set list, so it was really just me improvising and playing whatever came into my head. (The only problem with the spontaneous improv method was that I felt like I was being too repetitive/not diverse enough in my rhythms so that everything I was playing sounded similar and by the end of the half hour I started to run out of new ideas/things to play—next time I do this I’ll prepare a bit better and at least make sure to have some variation in my seed rhythms or something.) After the first few improv pieces I did alone, Ali came up on stage to sing with me, and we improvised several pieces together. That was really fun—she mostly sang wordless hums and trills but for the last piece she started to put some words in to what she was singing and I really liked the way that we sounded together. (It reminded me of some of the jams in the Integratron at Pantasia.) There was just enough audience that I felt appreciated but not overwhelmed, and I did hear some nice comments like “beautiful!” or “so pretty” from the audience (even the ones that were not my campmates). So overall it was a very positive experience and I’m proud and glad that I did it. (And I want to do it again!)

Art Car and Space Whale at Center CampAfter my official stage time was over, Josh and I were wandering slowly out of Center Camp and chatting with one of the people who’d been at the concert. He wanted to try the handpan, so we stopped at one of the benches and I let him play, and we had a nice little interaction there for a bit. We told him we were heading back over to Pink Heart and he told us a story about a negative experience he’d had there with our campmate Deron, who had apparently mocked his headpiece (he was wearing a goofy, colorful, little mini-hat/fascinator thing). We were surprised to hear about that and tried to make him feel better about it, without much success. (We heard another side of the story later on from Deron, and I think the whole thing just proves that we often hear what we want to hear and that some people are very sensitive to and have a hard time letting go of perceived offense or ridicule).

Black Rock City Lighthouse Service at nightThursday evening Josh and I went out with some other Pinkies for more playa art adventures. Highlights of that particular journey were Helios (which Josh climbed on and helped activate), the Black Rock City Lighthouse Service (which we did not climb on because it was too crowded and we were too flittery and now I’m sorry we didn’t), and the Sonic Tunnel (which we did walk through and it was awesome.) We also saw a several-stories-tall sculpture with red sails that I never learned the name of that flapped and fluttered beautifully in the wind. I really was intrigued by the concept of wind art this burn. I really love the movement of fabric and wind and the playa is a perfect place to play with that (there was another very simple but pretty sculpture not far from Pink Heart which was just three large triangular flags in a row made from something white (silk?) that caught the wind really easily and rippled and snapped, and a camp near us that had a whole lot of brightly neon-colored flags and streamers all over their camp). I feel really inspired to do another big freak flag art installation either next year or the year after using fabric (as opposed to the rebar ones I made a few years ago)...stay tuned!

[Da Vinci's Workshop Intro]

[Da Vinci's Workshop Part 1]

[Da Vinci's Workshop Part 2]

[Da Vinci's Workshop Part 3]

[Da Vinci's Workshop Part 5]

[Da Vinci's Workshop Part 6]

[Da Vinci's Workshop Part 7]

[Da Vinci's Workshop Part 8]

[Full Set of My Da Vinci's Workshop Pictures on Facebook]

The Temple on Wednesday morningSo now it is Wednesday morning and even though Our Heroine still has not slept, and neither has her bestie co-conspirator Anjanette, we decided it would be a good time to finally go to the Temple (which had apparently just opened that morning). We went to go freshen up a bit and I checked back in with Josh, but he was still sleepy and didn’t want to come with us. I changed into my Wednesday white outfit (which seemed fitting for a Temple visit) and grabbed my plaster bust art piece and then Anjanette and I biked over to the Temple. We split up when we got there (Anjanette had her own processing to do and I wanted to be by myself for a while) and I walked around the inner walkway for a bit, looking for a place that felt right to leave my offering. I finally settled on a corner of one of the four archways that led into the main sanctuary room.

The plaster bust I made to commemorate my Year of Living Cancerously, left at the TempleThen I found a place to sit down about 20 feet away with my back against a support pole where I could still see the offering I’d left, and I had a good cry for a long time, just thinking about everything that had happened in the last year and all the scary, painful, violating bits that I’d had to be so courageous through, and that now I was finally ready to release and burn away. I especially remember running my hands through my (still very short) hair and weeping for all the things I’d lost, and all the changes I’d been forced to absorb. After a while of that I was finally ready to re-read a copy of the letter to myself that I had written before I left (and which I’d taped a copy of to the inside of the bust so it could burn too.) I’m not going to reproduce the whole thing here (because believe it or not I do keep *some* things private), but for posterity (and extra juju) I will share the last couple paragraphs:

 

Self, you have just about made it through the valley of shadows, and that is awesome. You are a rockstar warrior goddess bright shining supernova and it is time once again to stand up and beam that sparkly light out and be a beacon in the darkness. Time to burn away the all the pain and the fear and the loss, and rise reborn like a phoenix from its ashes, keeping only the memories of your journey to give you strength, compassion and story fodder.

I love you, self. I am proud of you. You got this, it didn’t get you. The darkness only served to highlight how much light you truly had inside (not to mention all the light you were surrounded with...you have some amazing village). Welcome to “new normal”. May it and this next year be full of way more good things than bad, and may you always continue to burn bright.

Love,

Yourself

Julia and Anjanette in the giant picture frame with the Temple in the backgroundI also wordlessly hugged a couple of strangers who wandered by with grieving faces—there is something really special and moving about meeting and acknowledging a mutual experience raw open grief, no matter what it’s about or where it comes from. Eventually Anjanette came and found me and sat with me and we hugged and cried together for a bit. I gave her a rock from the spot where we sat and she gave me one too. We talked some and sat quietly some until eventually we were ready to get up and go. Leaving the Temple I felt tired and somber but also cleaner and lighter, having finally observed the major part of the closure ritual that I’d been anticipating for so many months.

Julia inside the HOME installationOn the way back to camp we couldn’t resist diverting a bit to see some playa art. We took pictures in the big picture frame and at the “HOME” and “EARTH” metal letters installation. (We also saw Mark Day, the “24 Hours at Burning Man” videographer at the “HOME” letters, dressed as playa Elvis and lip-syncing to “Bridge Over Troubled Waters”, which apparently turned into its own whole video shot at various installations. It was another great example of crazy juxtapositions and “you just can’t make this shit up”.) Once we got back to camp, I went back to our yurt and Josh and I decided to go on a quick ice run. Unfortunately, while we were biking down the Esplanade on the way to Arctica I got into a bike accident—it was one of those stupid things where another woman and I were biking towards each other and we each swerved the same direction to try to avoid each other and then swerved back in the same direction to avoid each other again but then we were too close and I turned the wheel of my trike too hard and not only did we crash into each other but my trike tipped and I went down flat on the road. Ow. I wound up with a big scrape under my right armpit and a huge bruise on my right calf. The underarm scrape hurt bad enough that after we got our ice we also stopped off at the medical tent, where they cleaned and bandaged me but couldn’t really do much else. I had to spend the rest of the week being really careful when I schlepped my Camelbak around and the bruise developed into all sorts of pretty colors during the week (and after we got home), but I didn’t let it stop me. I’m grateful though that it wasn’t worse...it totally could have been. (Just like the rest of this past year.)

Julia in the When we got back after all excitement I decided I was finally tired enough to take a nap. Luckily this year we had brought an actual portable air conditioning unit to go in our yurt so I was able to get a couple hours of sleep even though it was the hot part of the day.

I got up around 2 because I was supposed to help serve ice cream but as it turned out there was a surplus of camp-mates helping out and they didn’t need me, so instead I hung out for a bit and then went to work at the water bar serving cucumber water for a couple of hours with Anya. Working the water bar is another of my favorite things to do because just like with the ice cream, it’s really satisfying to give people something so delicious and desirable, and just like at Arctica, you get to meet a wide variety of different kinds of burners. The nice thing too about the water bar is that there is also much more opportunity for conversation and connection because it can take a while to fill up people’s containers. I asked people how their burn was going, or to share a story about what they’d been doing or seeing that was cool. One of the highlights of all that interacting was that I got to meet Kate, the artist of Helios (a really gorgeous art installation that was relatively nearby but which we hadn’t gone to see yet...more on that in a bit), and tell her how much I appreciated what she had created.

Josh and Mary in our yurt's shade patioWhen I was done with the water bar I wandered back to our yurt and found Josh outside in our shade patio talking to our friend Mary (aka Pom-pom, a friend from back in our Sacred Spaces/Yaboogie Pod days). We had a joyful reunion and some catch-up hangout time, but eventually it started to get dark and she wanted to leave. We gave her some lights and promised to meet up again for burn night like we usually do.

Wednesday evening after dinner a bunch of Pinkies got all dressed up to go to the Opulent Temple White Party, but as often happens it took us quite some time to actually gather everyone who said they wanted to go together, so there was also a lot of hanging around in the Pink Lounge waiting for this one to go do that, or that other one to go fetch someone else, or for people to change clothes or whatever. Our friend Lea showed up during that hanging around time, which was great, and we convinced her to join us at the White Party too. (We even convinced Halcyon to join us at the last minute.) I had wanted to put some metallic tattoos on with Anjanette, but we never got around to it and then she left to go find Rory and go over to Opulent Temple on the Monaco, so while we were hanging about I went to go fetch the tattoos from our yurt with the intention of bringing them back to the Pink Lounge for everyone to put on. But on the way there I ran into MissyKat and she said she had tons of metallic tattoos and body paints and other decorative stuff so we just used hers.

Josh and Julia at the White PartyWhile we were messing around with the tattoos, a dreadlocked guy with glasses showed up, asking for me. It turned out to be Miguel, a handpan player who’d seen my post on the handpan.org forum about jamming at Burning Man and had come by to find me. (He had stopped by and asked for me the previous day too, but I’d missed him.) I told him I was going to be leaving soon and he said “but are you leaving right meow meow?” He’d brought his pan and wanted to play at least a little bit, which was hard to resist. So I ran back to my yurt and got out my Saraz and brought it up to the front. Miguel turned out to be an amazing player in that super-fast percussive kind of style, which I couldn’t really keep up with (and it made me feel kind of shy and inferior so mostly we just listened to him play. He had to leave after a few minutes to go play a concert next door, so we only had a brief encounter, but I’m glad we connected even though it gave me that burst of inadequacy. I tried to get him to come play with me the next day during the time slot I’d booked at the Center Camp stage, but he was non-committal.

Supernova and the Wishing StarAnyway after all that (and I never did get around to the tattoos), we finally motivated as a group and headed out to the White Party. I remember there being a cool little conversation between Halcyon and Josh about a bunch of philosophical stuff (I think Halcyon was riffing off Josh’s “Mystic” playa name). We found Anjanette right away when we got to Opulent Temple, and had a good time dancing there for a while. (Lea even got to dance with one of the jellyfish.) I especially had fun grooving with my torofluxes there. We randomly ran in to our buddy Alex from Sacred Spaces there, and shared a sweet hug but then lost track of each other. Eventually though we got tired (both physically tired and tired of the scene) and headed back to Pink Heart. But of course we detoured through the playa a little on the way home and saw a cool art installation: a big twinkly bright “wishing star” where you could make a wish by putting a wooden star-shaped token over a sensor on a stand set up about 20 feet away from the star, and then when a single star flashed you made a wish on it. A few moments later the whole thing flashed and glowed. Apparently the more each star got wished on, the brighter it glowed. I wished for my cancer to stay gone and for my health to stay strong. It seemed like a fitting end to a day that had started with a visit to the Temple.

[Da Vinci's Workshop Intro]

[Da Vinci's Workshop Part 1]

[Da Vinci's Workshop Part 2]

[Da Vinci's Workshop Part 4]

[Da Vinci's Workshop Part 5]

[Da Vinci's Workshop Part 6]

[Da Vinci's Workshop Part 7]

[Da Vinci's Workshop Part 8]

[Full Set of My Da Vinci's Workshop Pictures on Facebook]

The Space Whale at Center CampTuesday morning a group of us Pinkies (me, Josh, Mom, Anjanette and Deron) put on our tutus (for Tutu Tuesday, of course) and decided to go on a playa art adventure, spurred in part by reports that the Space Whale baby (more on that in a minute) was wearing a giant tutu in honor of Tutu Tuesday, and in part by Anjanette’s desire to go say hi to our mutual friend Chris (Chrispy) at her camp (ASS camp) a few time zones over. We hopped on our bikes and headed for Center Camp, which is where the Space Whale was located. The Space Whale was an ambitious and amazing project: a life-sized diving blue whale mama made of ball-and-joint metal skeleton skinned with over 1800 panels of gorgeous stained glass designed by Android Jones, with a baby whale rising to meet her. (The baby whale was not skinned with stained glass, but it was, as we’d been promised, wearing a purple tutu that day. Later in the week we spotted a narwhal horn on the baby whale.) We ooohed and aaahhed and I took a bunch of pictures but then we got restless (as you do when you’re on an art adventure) and kept going to ASS camp. We stopped in their lounge and did indeed find Chrispy and hung out with her and some other folks for a bit.

Lord Snort the giant metal warthogThen we got restless again and went to go look at more art. Highlights included a gorgeous wind-powered kinetic sculpture (made by the same artist who made the Olympic torch for Rio, apparently), a giant spinning metal warthog called “Lord Snort” that you could climb on (though we didn’t at the time, because it looked too intimidating...in fact apparently the spinning got to be too dangerous so they shut that part of it down later in the week), an incredible huge orange and blue octopus made out of concrete surfaced with a mosaic of round ceramic tiles (we met the artist, Peter, and some of his crew out there...they were giving away ceramic stamped octopus pendants and leftover bits of the mosaic tiles, and it was really hot out there with no shade so I told them I’d come back to them with some ice cold cucumber water from Pink Heart), an incredible 12-foot tall bear with “fur” made entirely of pennies pressed edge-way into concrete, and a giant friendly-looking metal robot called “Mechan-9” sprawled out on the playa as though it had just collapsed and been partially buried there, which we climbed all over.Josh and Anjanette climbing on Mechan-9

Eventually we headed back to Pink Heart, but as soon as we got back I went to our water bar and filled up two Pink Heart water bottles full of cold cucumber water and convinced Anjanette to come with me to give them to the Octopus crew. We gave them the bottles and they loved them, and we had a bit more chatting and took a few more pendants to give away, but then just as we were getting ready to leave the dust got worse and worse until it was a total white out so we had to stay put for a bit. (Anjanette and I seem to have a particular gift for getting caught in white-outs together.) By the time we got back to camp we were completely frosted gray with dust. But dust is something you learn to live with and appreciate out there so we just wiped down and then we went to go serve ice cream (Pink Heart also gives out vegan coconut milk ice cream on three different days, and as previously mentioned, free frozen treats in the desert are AWESOME). I spent a fun hour or so dancing up and down the line giving people ice cream while Josh and Alex scooped. Just like at Arctica, I loved being able to make a quick positive connection with a cross-section of amazing burners. Some people just take the ice cream with a smile or a thank you, but some you get to talk to for a minute or flirt with or make them laugh with a joke.The amazing mosaic tile Octopus (and fish)

When that was over, Kathy convinced me to go over to our neighboring camp, Red Lightning, to see our camp-mate Karpo (who is a “Happiness Coach”—what a great job!) do a “Happiness Workshop”. We had a good time listening to him and participating in the workshop, and we committed to buddying up and being accountable to each other in starting a new happiness habit—a “savor journal”, in which you record something every day that you have particularly savored and enjoyed. (As you can probably already tell, “savoring” was another one of the themes of this burn, so it seemed appropriate.)

Headspace at night, yellow versionTuesday evening a bunch of Pinkies got all dolled up and chemically enthused and hopped on Headspace for a “roam around the playa” party, and that was really fun. Headspace was packed with people, not just Pinkies, but there were a lot of us on there. We wandered all over the playa while appreciating the music (our camp-mate Aanshul DJ’d, as did Jonny Quest), the constantly flowing parade of blinky lights and the night-time art. I especially remember how fun it was to be dancing on the top floor of Headspace where the DJ was and the way the whole floor jumped and bounced like a trampoline when the bass dropped and people started hopping and stomping around in unison. It was a little scary at first (I kept thinking “will this thing hold if we all keep jumping up and down like this?”) but ultimately I let go of the worry and it was exhilarating. One of the coolest things we went by was the Sonic Tunnel, which was a series of LED-light hoops set into the playa so that it made a super long tunnel that people could bike or walk through. The lights on the hoops were programmed so that they formed a pattern that shot down the “tunnel” in various configurations. They were sound-activated too so various art cars were parked around it having fun trying to change the patterns.

Anjanette, Terri and Julia in the blue glow of HeadspaceAt the end of the night I also remember being upstairs leaning on the back railing with Anjanette and our camp-mates Jessie and Phil and laughing about how a lot of our Burning Man philosophy could be distilled into two things: the good ol’ “You just can’t make this shit up” (aka life is weirder and more amazing than one can ever anticipate or imagine, and that’s why it’s awesome) and “that’s a hell of a lot of shiny shit” (aka there is so much more out there shining for us and calling to us than we can ever absorb at one time). Jessie added her own take on the latter, which we then decided to adopt: “that’s a giant fuck-ton of shiny shit!” It’s so easy to make experiences at Burning Man into metaphorical life lessons...they practically write themselves. I also remember having a silly flirty conversation with Anjanette and a couple of random guys up there on the second floor of Headspace, one of whom was a bald guy in his 50’s named Czaba, from Hungary, about ethnicity (“oh you Russian women”) and astrology and all kinds of other random stuff.

The Dream Swing, Heart Arch, Tetrahedron and Love Trees at SunriseWe got back from the Headspace adventure probably somewhere around 2 or 3 in the morning. Josh was tired and wanted to go crash and I went with him but then I wound up not being able to fall asleep. I laid there in our yurt for a couple hours hoping to wind down but the only thing that happened was me getting increasingly conscious of my unhappy digestive system so around 5:30 or 6am I got up and got dressed and went out to the porta potties. When I got back I was still feeling awake so I decided to go out to the Pink Lounge to see the sunrise. There was no one in particular around so I actually headed across the Esplanade to go sit on the bench next to the Tetrahedron and take some pictures. After a few minutes of hanging out there, there was a tap on my shoulder and I heard someone say “I should have known I’d find you here.” It was Anjanette, who also hadn’t been able to sleep. We hung out and talked and watched the sun rise (which was GORGEOUS) and took some pictures. Eventually Mama Doody came out and joined us (she was just coming home from dancing the sunrise set at Robot Heart) and we had a nice little hang out with her.

[Da Vinci's Workshop Part 1]

[Da Vinci's Workshop Part 3]

[Da Vinci's Workshop Part 4]

[Da Vinci's Workshop Part 5]

[Da Vinci's Workshop Part 6]

[Da Vinci's Workshop Part 7]

[Da Vinci's Workshop Part 8]

[Full Set of My Da Vinci's Workshop Pictures on Facebook]

Anjanette and Julia in the Pink Lounge at Pink Heart CampMonday was a slow start. I was hoping to be able to go to the Temple and place my art piece and have my processing time, but the Temple wasn’t finished yet (there were quite a few things actually that weren’t finished by Monday, including the Man, whose head had broken off and they were struggling to fix, the Catacomb of Veils, various big theme camps, and probably a bunch of other things I didn’t see). So instead there was a fair amount of hanging around both in our little shade patio outside the yurt and out in the front of camp in the Pink Lounge. We had fun reconnecting with people we hadn’t seen in a long time (like Fink Purry and Aurora Gold, whose RV was next to us) and got to know some new-to-us Pinkies like the adorable Keith (who made the Love Trees art project across the playa from the Pink Lounge) and his wife Ali (later renamed Bliss), who were from the U.K., and Deron (an old friend of Halcyon’s and an amazing artist, who drew super cool sharpie “tattoos” on my arms).

Josh with HeadspaceWe also got a chance to finally see Headspace, the amazing art car that one of our camp-mates (Mark) had built and brought to the playa this year (with a lot of help from a dedicated group of people, including our camp-mates Kathy and Anthony). They were still working on it when we first saw it, but we got a chance to get on it and look around and it was seriously gorgeous in every detail. I especially loved the metal sides with the “HS” logo cut out of them in a beautiful pattern, the gorgeous and comfy purple velvet cushions on the bottom level and the metal stairs that led to the upper deck with cut outs of the ten principles (at night these ten principles cutouts glowed with rainbow colors). Of course the face itself on the front of the car (which appeared to be white when viewed one side and black from the other, and was all lit up with changing color LEDs at night) was gorgeous and amazing too. Josh and I had contributed to the Kickstarter to help fund the car, and I was excited to see one of the “perks” of that contribution, which was supposed to be our names engraved on a copper plaque as “Headspace crew”. We found the plaque—but only Josh’s name was on it, not mine (probably because he was the one who actually sent in the contribution), which kind of bummed me out. He got a pink captain’s hat with the Headspace logo on it and some other schwag too, but at least we can share that.

Emily and Julia having grilled cheese sandwichesAround lunchtime someone told us there was a camp right behind Pink Heart that was serving grilled cheese so Mom and I went to go get one. They were pretty delicious (as is any food someone else makes you in the desert) and even Mom, a diabetic, decided to treat herself to one.

Around 2 in the afternoon a big group of Pinkies gathered up to go take over a service shift at Arctica (the group that sells ice to the city). Like last year, Josh was a Slinger who hopped up in the ice truck and pushed ice from the back out to the front for people to grab and bring to the counter, and I’d once again signed up for a Greeter shift with Anjanette, so it was my job to welcome people to Arctica and make sure they knew what their ice options were in order to keep the line moving quickly. Even though it wasn’t in the formal job description, we felt was also our job to keep the people entertained and make even waiting in line into a true Burning Man experience. So we turned the enthusiasm and energy up to 11 and joked and played and teased with all comers, but with love since after all we were also representing Pink Heart. I especially had fun when there was no line—I would stop people as they approached the entrance and say “hey! C’mere! I wanna show you something! Wanna see something awesome?” and then I would gesture at the inside of the tent and say “Look! There’s no line...and you’re next! How often does that happen? Savor the moment! Enjoy!” (So really I was gifting them a moment of perspective.) I also joked around with the people in the front of the line by asking “are you ready? Are you focused and clear? Are you preparing to seize your moment as soon as it comes to you? Yeah? Ok, ready people cross the line!” (There was a literal bar—the bottom part of the dome—to step over as people came into Arctica, and drawing people’s attention to it helped them not to trip over it in their excitement.) That too was hopefully a gift, a humorous reminder of how our thoughts and intentions change our realities. Those few moments there were no people coming through to buy ice I’d chat with the other Pinkies and dance a little. It was a good long full three hours of playing with and talking to people and I was hoarse but happy afterwards. I got a few neat little playa gifts too. I love being able to meet and interact with (and gift enthusiasm and perspective-shifts to) such a wide and varied cross-section of burners...after all just about everyone has to come buy ice at some point. I would totally do another Arctica shift next time (though I am also attracted to doing a Center Camp coffee shift or even a Greeter or a Temple Guardian shift, for similar reasons).

Headspace all lit up at nightWhen we returned triumphantly with our ice (and about $40/each in tips, which we contributed to the camp fund for buying ice), I was supposed to have a water bar shift but it turned out we were having a camp meeting instead. It was great to gather with all our camp-mates and introduce ourselves and get in the Pink Heart groove with Halcyon’s inspirational words. Lots of people (including Josh) got recognized for their over-and-above contributions to various bits of making camp go that year with rad pairs of glasses from Halcyon.

Julia and Josh on board HeadspaceAfter camp meeting there was dinner and then that evening they pulled Headspace around to the front of camp right next to the Pink Swing and the Love Trees and the Tetrahedron and had a dance party there, which a bunch of us Pinkies enthusiastically checked out. The nice thing about having a party in your front yard is that you don’t have to schlep all your survival stuff with you and when you get tired, you can just go crash, which eventually, after much dancing and other fun shenanigans, I did.

[Da Vinci's Workshop Intro]

[Da Vinci's Workshop Part 2]

[Da Vinci's Workshop Part 3]

[Da Vinci's Workshop Part 4]

[Da Vinci's Workshop Part 5]

[Da Vinci's Workshop Part 6]

[Da Vinci's Workshop Part 7]

[Da Vinci's Workshop Part 8]

[Full Set of My Da Vinci's Workshop Pictures on Facebook]

Yay, it’s finally time for the Burning Man wrap-up and reflection. As usual I am writing this a few weeks after returning home, when the dust has mostly settled and/or been cleaned off most things, so some of the immediacy and detail has faded but some of the lessons and themes have finally clarified. I already sort of did a context-setting introduction last week when I talked about “returning” as one of the big themes that affected/came out of reflection upon this year’s burn, so I’m going to just jump right in to the day-by-day recounting here. As usual though, you are welcome to click here if you want to just skip to the end of all this detail and read the list of lessons and takeaways, and click here if all you want to do is look at the pretty pictures with captions. And if you are unfamiliar with Burning Man in general, you can go read some of my initial entries from 2011 in which I do lots of ‘splainin’, or click here to go to the official Burning Man web site which has more info and content and things to look at than you can possibly imagine. (But don’t get lost, come back here eventually!)

Josh finishing up the sign for the Pink Heart Water Bar This year’s theme was Da Vinci’s Workshop, which provoked some thinking about Makers and making things (and was a nod to the Maker Movement). Normally I am all in when it comes to making things, and as previous years have shown I like to make big art pieces to bring, but with all my health distractions this year the only things I managed to make for Burning Man were a new pink scallop-coat and the plaster bust art piece I mentioned in the previous entry. Josh however had committed to making a big new infrastructure piece for our Pink Heart camp: a new modular metal water bar to replace our janky wooden one (one of Pink Heart’s major gifts is that we serve ice cold cucumber water 24/7 to thirsty citizens of Black Rock City). Unfortunately, given how difficult and distracting our pre-burn summer months were (with readying for and executing a month of summer camp and my undergoing and recovering from major reconstructive surgery in July, plus a few trips), the way that project came together was through Josh working heroically hard and mostly by himself (with some last-minute assistance from me) to get it done in the couple of weeks before the burn. Then he went up early on Thursday for build (with Anjanette, in a big U-haul that in addition to the water bar was also able to take a bunch of our other big items, thank goodness), to help put together both the water bar and Pink Heart camp. I stayed behind to finish all the packing and get kids situated for back-to-school and then Mom and I packed our stuff into our trusty minivan and drove up together on Saturday, with an overnight stop in Reno at the Grand Sierra Resort. 

Julia and Emily all packed up and ready to leave for Burning Man. Look how clean we are!Mom and I had reasonably smooth sailing out of the Bay Area and up to Reno, and arrived in Reno at the GSR around 7:30pm. It was a GIANT casino resort hotel, and a little overwhelming to us with a lot of activity, but we checked in and got our room and were able to chill out for a bit. We were hoping to meet up with another few Pink Hearters in Reno (Ari, a burgin from Israel whom we’d never met, and our friends Kathy and Anthony who were rolling in from Phoenix), and after a flurry of messages and phone calls we did manage to connect up. We decided to see Ari in the morning (our plan was to meet up with him and Kathy and Anthony for an absurdly early breakfast at around 4am and try to leave around 5am to caravan out to Black Rock City together, hoping to avoid the huge long wait to get in by arriving in the early hours) but we wound up managing to have a late dinner with Kathy and Anthony at the GSR. This was the first time we’d met Anthony, and he was a true delight just as we’d thought he would be. It was so fun talking and reconnecting with them that we didn’t get to bed until close to midnight.

The next morning we did in fact wake up at 4am and went blurrily down to the same restaurant we’d been in the night before to have breakfast...and that’s when Mom discovered that she didn’t have her daily medications with her. A bit of panic ensued while we half-unpacked and searched the car to see if they’d been packed with the rest of her stuff. Eventually we came to the conclusion that yes, they’d been left behind, and though Mom was a little freaked out, I assured her that there was a relatively simple solution: we could stop at a pharmacy there in Reno to get an emergency supply before heading out. It was like running into unexpected traffic: a bummer and a delay, but ultimately resolvable. It was our introduction to “burn time”, as Josh would put it (having suffered similar schedule setbacks in prior burns, we’d learned not to hold on to anticipatory timing too tightly.)

This incident also brought into focus something that would turn out to be a major theme of this year’s burn, exemplified by a quote that I’ve kept around for a long time: “Everything is going to be okay in the end. If it’s not okay, it’s not the end.” Which basically says to me that anything one experiences as uncomfortable or unhappy (or in this case, as an annoying delay) is going to pass, and things will eventually turn out to be okay. If you can just hold on to the idea that negative states of discomfort or upset are temporary, and focus on the fact that the default state of things is positive, it feels better in the moment—and it is surprising what you can endure while you are waiting for things to turn out okay. (Now that I’m typing this, I’m realizing that this theme has been with me through the entire cancer saga as well. It’s also closely related to Halcyon’s “crap or cone” story about where you choose to put your focus. But I digress.) That ability to hold negative things lightly worked for us that morning, and helped us feel better about the change in plans. Thank goodness we were still in a big city (and hadn’t driven straight on through and discovered this on playa and had to go through ingress twice), and that the pharmacy Mom uses (CVS) had a local branch nearby. The local CVS didn’t open until 8 though, so we had a few hours to kill. But at least we had each other and some friends to talk to. We met up with Ari (who turned out to be a delight as well), and then Kathy and Anthony joined us as well and we all sat around and talked with another burner sitting at a table next to us (John) while we finished breakfast.

At around 6am, Ari decided to go on ahead without us, but we waited around with Kathy and Anthony for a while (they had discovered a need to run their own errand there in Reno before leaving too) and then they left and we went over to CVS to be there when they opened at 8am. CVS as able to fill Mom’s prescriptions no problem, so by around 9am we were back on the road.

Anthony and Julia at Love's, with bonus cookieWe stopped for gas at Love’s in Fernley (our traditional last-stop-before-BRC destination) and discovered that Kathy and Anthony were only about a half hour behind us, so we waited around there for them to come join us. (See, it all worked out okay.) We left Love’s at right around 10am and got on the road, which turned out to be incredibly smooth sailing (unlike last year) all the way to Gate Road into Black Rock City. Once we got into the Gate Line though, it took us about 5.5 hours to make it all the way in to the city and to Pink Heart. But it all worked out okay...at least we had Kathy and Anthony and all our enthusiastic arrival excitement to keep ourselves entertained (I wound up playing a lot of harmonica again...I don’t know why that has become an arrival tradition for me, but apparently it has), and we still made it to camp in the daylight to set up, which is what we’d wanted. (And just in time for dinner, too!) 

Emily and Julia waiting in line to get in to Black Rock City, with bonus harmonicaArriving at camp was a great experience, even though we were still a bit discombobulated from our long journey. There were lots of Pinkies around and we were enthusiastically greeted and helped to unpack our van. Josh had already set up and prepared our yurt and outside shaded patio area, so we mostly just had to move stuff in and then help Mom stake and put up her tent and shade structure. Lots of Pinkies hugged me and looked me in the eyes and said how glad they were that I’d made it to the burn that year, that they’d been reading my posts and sending me love during the cancer saga. I just kept grinning and telling people “Yeah, I’m just so stoked to be here!”

We did some more set up, and then a bunch of camp-mates wanted to go out dancing so Josh and I changed into night-roaming clothes and went out with them. We headed over to 10:00 and stopped at Opulent Temple. They were not completely set up (no lights, no one else hanging about the dance floor) but they were playing music so we stopped for a bit and danced there. It was so awesome to just look around at all the happy Pinkie faces and it finally felt like we’d arrived at Burning Man. For a while it was just us Pinkies, but we attracted other passers-by and it made for a fun impromptu dance party.

The Pink Heart Water Bar that Josh made, in its natural settingThen there was some more wandering around, including a stop at Duck Pond, a dance camp I’d never heard of but others wanted to go find. We didn’t stick around Duck Pond long because the music wasn’t really grabbing us, plus I was getting really tired after a long travel day. So Josh offered to walk me back to Pink Heart, and for a while we walked with Tom and Viren. I had a great time talking deep philosophical concepts with Tom. He told me about a bunch of things he’d recently learned from various videos and lectures. One of them was something similar to the “we are all made of stardust” concept that I’d heard before, but even more specific about how supernovae create the universe and how we all have a little bit of supernova in us. Of course I liked that. And I liked Tom’s self-deprecating but enthusiastic charm—both he and Viren are such wonderful young men, with lives that are so different from mine yet connected so lovingly through the Pink Heart family (or PHamily as we like to call it) experience.

Which leads me to another them of this year’s burn for me: PHamily (and by extension, the families we choose). I spent a lot more time with camp mates and at camp this burn, and felt like I got closer to PHamily I had already known as well as made some heartfelt new connections. Which is not to say I got close to every single Pinkie or managed to spend enough time with each and every one of the bright souls in our camp to really feel connected, but the desire for and delight in connection was very strongly there all around. More on this later.

[Da Vinci's Workshop Part 1]

[Da Vinci's Workshop Part 2]

[Da Vinci's Workshop Part 3]

[Da Vinci's Workshop Part 4]

[Da Vinci's Workshop Part 5]

[Da Vinci's Workshop Part 6]

[Da Vinci's Workshop Part 7]

[Da Vinci's Workshop Part 8]

[Full Set of My Da Vinci's Workshop Pictures on Facebook]

Well well, it’s been a while, eh? Rest assured that the delay was not due to lack of things to report on, but as usual that there were too many distractions. Josh and I went on a trip to Ashland (yay Shakespeare!), the kids went back to school, and mostly what kept me away from the computer was the usual time-and-energy suck of getting ready for and then being at (and now recovering from) Burning Man. Anyway it is clearly time for some updates. Maybe not ALL the updates, as the title of this post seems to promise, but at least a bunch at once.

Patient Patient Update

So how has it been going for the patient patient, you might be wondering? Well, I’m happy to report that for the last few weeks I have no longer felt like a patient, (which is probably why I stopped updating so often). In fact, I am feeling pretty strong and healthy, all things considered, and almost entirely back to a normal-to-me level of activity. Actually, as of around mid-August (when I was approximately 6 weeks away from the reconstruction surgery), I was feeling like I was mostly recovered, at least as far as standing up straight and using/moving my body. (I was still dealing with somewhat lower energy levels, which mostly made me want to nap more often.) I went to a follow up visit with Dr. Sbitany on August 19th where he basically told me that I looked great (from his “proud of my handiwork” point of view) and I could do whatever I wanted now with no more restrictions. He encouraged me to massage the scars and scar tissue and we talked about the final “clean-up” surgery (in which my areolas get made circular again and various lumps and bumps are addressed). That final surgery sounds like it will be relatively minor and not require a hospital stay or drains or a long recovery time or anything. (Whew!)  I have yet to schedule that surgery but am hoping it can be some time in early November (since I’ve already hit my deductible for this year).

In other cancer news, I also did some blood work and met with my oncologist about the final phase of treatment, hormone therapy. The blood work showed that I was well on my way towards menopause (thanks, chemo) but not quite fully there yet. That meant we had two options: 1) bring full menopause on now by shutting down my ovaries with monthly shots of an ovarian suppressor (oh boy) and put me on an aromatase inhibitor for the next 5 or so years (the aromatase inhibitors are considered slightly more effective at decreasing recurrence risk), or 2) let the menopause/ovarian shutdown process continue to happen naturally and go with tamoxifen for the first year (and then reevaluate). I’m all for letting things happen naturally and avoiding painful shots, so I chose the latter, with the support of my oncologist. I also made a pitch for not starting the tamoxifen (which is a daily pill regimen) until after I got back from Burning Man, which she grudgingly agreed to. I started the tamoxifen about a week ago and I am happy to report that so far the worst side effect seems to be moodiness/irritability (though part of that is probably also the usual post-burn re-entry feels...it’s kind of hard to tell the difference). I have also had some mild queasiness and I’ve felt some hot flashes at night, but they’re not too bad and I haven’t really experienced them during the day (yet). So at least for now, things seem to be tolerable and “new normal” seems to be well underway. Given that tomorrow is my one-year anniversary of diagnosis (though I will probably continue to mark the date not as September 14th but as Rosh Hashanah, which changes slightly every year...this year it’s not until October 2nd), it seems like I was successful in my goal to fit almost everything cancer treatment-related into a “year of living cancerously” (with the exception of this last fix-it surgery). That feels really good to me. I had to give cancer a whole precious year of my life, but now I am ready for it to recede into the background again, and am excited to go back to all the other identities and activities that I vastly prefer.

Speaking of which, that is a perfect segue into...

Burning Man Update

I have a lot of thoughts and a lot of the usual for-posterity recording of all the minutiae to do yet about Burning Man, but for the purposes of this particular blog entry, I want to focus on one of the big themes that is beginning to finally come into focus here, one week after getting back. Now, to be honest (and in keeping with this year’s theme of pursuing radical openness that I began at last year’s burn), I went in to Burning Man already anticipating this particular theme, which was that this year’s burn was going to represent a physical and emotional returning (a victory lap, if you will), a metaphorical as well as literal coming back to the happy place I was in before all this cancer mishegoss (that’s the Yiddish word for “crazy shit”) started happening. See, last year’s burn was fantastic (though you’ll have to take my word for it, because I never did the usual detailed journaling afterwards due to the aforementioned mishegoss...maybe someday) and I had a great time as usual playing and exploring and being my freest and most expressive true self. Then literally a week later, cancer hit me and sent me on what turned out to be a crazy rollercoaster ride of existential crisis, treatment and loss. A whole year’s worth of rollercoaster ride. But at least it was “only” a year...I was determined to make it so and I was lucky to have succeeded in that goal thanks to the support of my awesome healthcare practitioners and my amazing friends and family who supported me through the whole cancer saga. Returning to the burn again this year was the reward and the goal post that I was aiming for, the period (or maybe the exclamation point!) at the end of the sentence that started with “I was treated for breast cancer and then I got better.” So it represented more than just gratification through the usual playing and exploring and expressing. It felt like I’d made it through the valley of shadows back into the bright hot shiny light (or put another way, like someone had thrown a dark heavy cover over my usual supernova self a year ago, and that cover had finally been removed). Everything I did and everyone I spent time with in Black Rock City was overlaid with a sparkly patina of gratitude and savor. People would say to me “I’m so happy you made it back here this year, how are you feeling?” To which I could only reply, “I’m just so incredibly stoked to be here!” I was constantly reminded of how delicious and enjoyable it was (and what a contrast it was) to be in a place where I was not just allowed but encouraged to be doing what I wanted, when I wanted, with whom I wanted. My only restrictions were (as usual) the ones I placed on myself, not from anything that had happened to me. (I had especially been nervous that I wouldn’t have the physical stamina to do All The Things this year at the burn, but I totally did.) Returning to the burn after this year of living cancerously, in which I had had to give up and grieve so much, made it clear to me that, even though I had been through a shitstorm of difficult challenges, at the end of the storm I was still me (still Supernova!), and still able to participate as fully as I wanted to in this week of intense physical, emotional and I would even say spiritual activity. And that was deeply, profoundly satisfying.

My Year Of Living Cancerously - An Offering to the Temple at Burning Man 2016Which is not to say that this returning was all emotionally easy. Anniversaries are hard, as anyone who has ever grieved something or someone will tell you. I had a huge pile of grief and loss and change to process from the year between burns, and I bore that burden throughout the burn until the night before we left, on Sunday when the Temple burned and took at least some of that pile with it. I spent a whole morning at the Temple on Wednesday (nearly halfway through the burn...I tried to go earlier but the Temple wasn’t finished yet) in an attempt to ritually bring closure to the past year. I placed the “my year of living cancerously” plaster bust art piece that I’d made in a spot that felt right and then sat a few yards away from it and cried and prayed and pondered and read and re-read the letter to myself that I’d written about this past year and my hopes for the future. (I re-read that letter during the Temple burn too.) I revisited the Temple on Saturday and checked in on my art piece and saw how it had been integrated into the beautiful dusty organic clutter of loss and remembrance that had sprouted all around it, and pondered some more about how even when we want to lay our burdens of grief and loss down and try to ritually close certain chapters of our lives, they never fully leave us. Some things break and are never completely fixed. Some things are never fully or even partially recoverable. But you let go what you can and embrace the rest, dusty and incomplete and complicated though they may be. And new things come to join the old, and they get integrated or they overshadow or they distract or they compliment or maybe all of those things.

When the Temple burned on Sunday night, I felt both there and not-there in the experience. On the one hand, it was just what I wanted: sacred and quiet, soothing and uplifting, with metaphorically perfect and beautiful ember clouds and smoke angels twisting and soaring away into the night and the company of thousands of fellow burners (including many of my own dear ones) processing their feels all around. On the other hand, I felt a little too hyper self-aware and therefore emotionally forced, like I’d already done the processing work I wanted to and that this part was rote ritual at best or indulgent at worst. (Maybe it was that I had anticipated this moment for so long, longed for it and waited for it, so that it was hard to just be in the moment and witness the chapter closing.) The truth is that, like much of life, this moment of watching the Temple burn was all the things, all at once, and had additional insights and repercussions that I didn’t fully appreciate at the time but which I know followed me out of the moment and are even now inserting themselves into the rest of my life. (And *that’s* why ritual is powerful and why we do it in the first place.)

There will be more reflections and reporting on (and pictures of!) this year’s Burning Man experience to come in future posts, but this feels like an appropriate place to stop for now. And let me just say in closing, with full cognizance of all the nuances of meaning which can possibly apply here, I’m still just so incredibly stoked to be here. I’m grateful and amazed and relieved and proud of myself. As I wrote on that plaster bust which, along with everything else, turned into glittering embers and drifted away to another realm:

I am so glad to be alive...I got this!

Patient patient update time again. I went back to UCSF today to see the plastic surgeon for a follow up. I finally got the last three drains out, which is a HUGE relief. The doc seemed very happy with how things turned out overall, and said that I should let things settle for another month and come back and see him again. He wasn't worried about any of the swelling or bruising or bumps and lumps and reassured me that everything looked great and we'd fix any and all issues with one last follow-up surgery in the fall sometime (which will not require any drains or even an overnight stay in the hospital). He also cleared me for lifting a little more, gentle stretching and raising my arms above my head (as long as it doesn't hurt me to do it), and said I could drive whenever it felt comfortable to twist and turn. I even specifically asked about handpan playing (which caused him to look up what a handpan was on his phone, and he seemed impressed) and he said it would be fine. The only thing he specifically told me to avoid for at least another month is "lifting heavy things", which in this case I think means anything heavier than a handpan. ;)

I think the key is to ease back in to things slowly and pay attention to how my body feels as I do things. If it hurts, don't do it. For example, I still can't quite stand up straight, but I can try to do so more actively now without fear of tearing or damaging anything internal as long as I stop when it gets too uncomfortable. I'm really hoping that by some time next week I'll be able to walk for some decent distance without my back muscles killing me from supporting my hunched over posture. And maybe even be able to sleep on just a couple pillows instead of the big foam wedge I've been using. That would be awesome.

So okay, a bunch more patience and one more time under the knife and hopefully this reconstructive journey will be both finished and satisfactory. Slow and steady wins the race.

Time for a patient patient update. I’ve been laying low since getting home last week, and trying really hard to not. Do. Anything. (Besides sleep, eat, read, talk, look at Facebook, watch videos and lay about.) It’s harder than it sounds (hence the need for patience). I am trying to keep a good attitude about it and I have declared this the month of “Julax”, in which Julia relaxes throughout July. At least I have plenty of good books to catch up on and lots of lovely friends and family who come over to keep me entertained (which definitely helps the days go by). And every day I feel a little better and can do a little more. Slow and steady. Slow and steady.

In general, recovery is going as well as it can go. The first week was pretty rough and I was pretty weak and uncomfortable, but it’s slowly getting better. This was definitely the hardest surgery so far and it will be at least another week or two yet until I can stand up straight (I have been walking around hunched over like a little old lady because my stomach is so taut) or reach over my head or pick up anything over 5 pounds or drive. The good news is that I’m off the narcotic pain meds and able to manage my pain just by taking Tylenol, and that when I went in for my post-op visit today (first time I left the house since returning from the hospital) the nurse said that everything was looking good. The bad news is that even after today’s visit I still have 3 out of the 6 post-surgical drains in (I was so hoping to get them all removed today but it looks like I will have to wait another week, argh). But overall I am progressing satisfactorily, if slowly. So yay for that.

[This was posted to Facebook while I was awaiting my official release after four days being in the hospital after my DIEP flap breast reconstruction surgery. I'm posting it here too for posterity.]

I am being a very patient patient but I am so so ready to go home. Hopefully that will happen later today once the docs do their rounds. (Yay Independence Day!) I've done a lot of resting and healing in the hospital, and every day is better than the one before. I won't lie, it's been boring as heck but at least it hasn't been too painful (yay pain meds). There certainly is a ways to go before I can even stand up straight or move around without shuffling, but the trajectory is heading in the right direction, and I'm very happy about that. I know I'm in for a good solid month of Julaxin' and truly keeping it slow and steady...and you all can feel free to keep reminding me of that!

Met with a new UCSF plastic surgeon yesterday, Dr. Hani Sbitany (which is a pretty awesome name in my opinion). He is the DIEP flap reconstruction specialist there. He was very nice and he and his colleague Dr. Z (also very nice, but unfortunately I'm forgetting her full name) answered lots of questions for me and were overall very reassuring. Looks like I do have enough belly tissue to donate in order to get me to a D cup when this is all over (which will look similar to what I had after the initial reduction I did back in November). 

They confirmed some things I did know (e.g. it will take about 6-8 weeks to recover, with the first 3-4 weeks the hardest and most restrictive due to the abdominal stuff, and there will likely be one more relatively minor surgery after this one to address any remaining adjustments) and told me some things I didn't know (e.g. it's a 12 hour surgery, the donor tissue will be placed on top of my pec muscles not under them like the expanders, there will be several new scars, and they'll be moving my belly button several inches down). Dr. Sbitany  didn't see any reason to wait any longer so we went ahead and scheduled the reconstruction surgery for June 30th. That's the timing I was hoping for (I want to be healed up in time for Burning Man at the end of August) so I'm happy about that. 

Now I just have to screw that battered courage of mine to the sticking place once again and remind myself that I'm a good healer and that the end results will be worth it. I know I can do this. Still grumpily and futilely wishing I didn't have to, though.

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